Thank you for your continued input and welcome to those who have recently registered.

So far analysis is complete up to mid May, however work is ongoing on the more recent data. We have examined the relationship between symptom scores and dialysis days. Despite there being no clear relationship overall, in a proportion of participants there is a noticeable difference in a variety of the measures and we are looking into this further. Further work is also looking at possible relationships with anaemia and, for those not on dialysis, kidney function.

We will be presenting a poster reporting the initial findings from this website at the American Society of Nephrology conference in November. The original abstract and poster will be available on our return along with a summary of any feedback. This will be used to help us to refine the use of the website.

As part of ongoing development work there is now the facility to return a graph of your previous results after you have submitted your answers. If you would like this facility activated on your account then please use the feedback function to let us know. We are currently discussing potential ways to gather additional specific information including dialysis session times and (for PD patients) your 24 hour UF volume. We plan for these questions to be optional but we would certainly invite your feedback on these ideas or any other points.

In other news:
In partnership with our colleagues in the liver department we have now launched a similar site for patients with liver disease.